The JAKE (Jachin’s Angel Kisses Everywhere) Foundation was founded to support and fund children with Sturge-Weber syndrome. Watch the video below or read on to learn more and see how you can support us through donations, attending our event, or volunteering.
Mission Statement – to find a cure for Sturge Weber Syndrome and its complications through research support and to improve the quality of life for children and families living with unique medical challenges in our community
The JAKE (Jachin’s Angel Kisses Everywhere) Foundation was founded in 2014 as a way to give back to a community that has given so much to the Jordan family and other local families. Jachin Jordan was born in June of 2007 with a port wine stain birth mark covering more than 75% of his body. It was soon discovered that he had a rare neurological disorder called Sturge Weber Sydrome (SWS). The characteristic birth marks (Angel Kisses) are a distinct component of SWS. Additionally, SWS can result in progressive neurological deterioration. The impact of this on Jachin’s family, as well as other children and their families, was and can be significant.
The JAKE Foundation was formed as an extension of the previous 7 years of fundraising by its founders to benefit children with SWS and other neurological disorders. Additionally, through those efforts, we recognized needs for other children in our community and strive to also provide support for these kids and their families.